Year of Sharing gift recipients
Susan G. Komen® South Carolina: May Recipient
Susan G. Komen® South Carolina is part of the world’s leading nonprofit breast cancer organization, working to save lives and end breast cancer forever.
Susan G. Komen’s quest to end cancer addresses breast cancer on multiple fronts, such as research, community health, global outreach, and public policy initiatives, to make the biggest impact against this disease. In 2021, it is estimated in the U.S. that there will be1:
- 281,550 new cases of invasive breast cancer
- 49,290 new cases of ductal carcinoma in situ (DCIS), a noninvasive breast cancer
- 43,600 breast cancer deaths
- 2,650 new cases of invasive breast cancer
- 530 breast cancer deaths
(1American Cancer Society. Cancer Facts and Figures 2021. Atlanta, GA: American Cancer Society, 2021.)
The organization is made up of local activists in more than 120 cities and communities, mobilizing more than 1.7 million friends and neighbors each year through events across the country. Susan G. Komen hosts annual MORE THAN PINK Walks and Races for the Cure.
Nominated in honor of: Anna Johnson’s sister, Mary Barnwell, who is a survivor of breast cancer. In celebration of Mary and the many inspirational women and men we know who have lived with breast cancer, in October we will expand this last and very special Year of Sharing gift to include a virtual MORE THAN PINK Walk. We invite you to join us. Be on the lookout for more details as we draw closer to October.
Scleroderma affects connective tissue and the vascular system, causing an overproduction of collagen in skin or internal organs and resulting in disfigurement and disability. For some people, the condition is life-threatening. The Scleroderma Foundation’s mission is to provide emotional support, disease education, and research funding. Since 1985, the Texas Bluebonnet Chapter has served scleroderma patients, their families, caregivers, and loved ones by advancing this three-fold mission:
- Support: Programs, peer counseling, physician referrals, and education to help patients and families cope with scleroderma
- Education: Seminars, literature, and publicity campaigns to promote public awareness and education
- Research: Research support to improve treatment and find the cause of and cure for scleroderma and related diseases
Nominated in honor of: Jovana Placido, a Texas Bluebonnet Chapter support group leader whom nominator Lia Young met at her first scleroderma conference. “Jovana is an active member, advocate for her fellow ‘sclero’ warriors, and a true champion who puts others’ needs before her own.”
A Cure for Ellie raises awareness and funds and provides information and support to people affected by LBSL. Founded in 2013, A Cure for Ellie is named for Ellie McGinn, who was just two years old when her mom, Elizabeth, noticed her falling and exhibiting leg spasms, poor balance, and hand tremors. These classic symptoms show up in most LBSL patients during childhood or adolescence.
The McGinns began their public campaign with community support, then took their advocacy global. Using social media to rebrand the disease, A Cure for Ellie has raised tens of thousands of dollars and has united families around the world in the hope for a cure. Now, LBSL is known as the “Awesome Disease!”
Nominated in honor of: Families who won’t take “no treatment” for an answer and who use their own passion to drive awareness and funds for research. Nicole Van Hoey is inspired by—and made this nomination to honor— them and her neighbors and friends, the McGinns. Nicole sees Elizabeth McGinn as the epitome of those tireless, hopeful parents who rally to improve health research and care.
The dedicated community members, organizations, and volunteers at City of Refuge promote transformation through work and loving relationships. Single-site, holistic programming centers on four key areas to help individuals and families transition out of crisis:
- Heath/wellness: Daily meals offered to residents, employees, and guests. On-site partner provides medical, vision, dental, and mental health services.
- Housing: Bridge housing and support for unhoused women and children, and women recovering from sexual exploitation.
- Vocational training: Mentoring and job-training; and programs in coding, automotive tech, and restaurant/hospitality.
- Youth development: Services include residential child care; academic, health, and behavioral programming (elementary); private education (middle/high school); and financial aid (post-graduation).
Nominated in honor of: Hanna Gloria, who first brought City of Refuge to her husband Ed’s attention. Ed made this nomination to honor her as “a great wife and mother to our three kids. She’s a hard worker and business leader with a busy schedule, and yet she encourages our family to be civic-minded and seek opportunities to volunteer and serve.”
Dedicated to transforming the way youth navigate through the foster care system in America, Together We Rise works with social workers, CASA advocates, and other partners to educate volunteers — including people unable to foster — on issues within the foster care system while giving them meaningful ways to benefit the children in it.
To restore independence, confidence, a sense of belonging, and the simple joys kids often lose once in foster care, Together We Rise provides:
- NEW duffle bags to replace the plastic bags many children must use while moving. These “Sweet Cases” are packed with teddy bears, blankets, hygiene kits, and fun activities.
- FREE bikes and skateboards (for recreation and transportation).
- Scholarships ($90,000/yr) to 10-15 college freshmen.
- Birthday celebration boxes and MUCH more.
Nominated in honor of: Mrs. Bridgett Gibson (of Corpus Christi, TX), who is big hearted, loyal, and caring! Alicia Kim Philbert wouldn’t be a mom without using the fostering system TWICE, so she makes this nomination to honor Bridgett and all caseworkers who work with adoptive parents to protect and love foster children.
- Financially support and promote medical research to find a cure for Kennedy’s disease
- Create a support system for those living with Kennedy’s disease
- Share information about Kennedy’s disease for those who seek it
- Improve Kennedy’s disease awareness in the medical community
- Increase public awareness about Kennedy’s disease and its effects on families
Nominated in honor of: The late Dr. George Napper, Jr., who was diagnosed with this rare disease over 30 years ago. Inspired by his dedication and commitment to his wife of more than 58 years, Delores, Dr. Napper’s impressive career includes becoming the first Black police chief of Atlanta and serving as commissioner of what is now the Georgia Department of Juvenile Justice. An author and criminal justice professor, he also taught at Spelman, Clark Atlanta, and Emory Universities. This nomination was made by Dr. Napper’s son, Chipp Napper.
All for Lunch, Inc. believes no child should be denied a hot, nutritious lunch meal, regardless of their ability to pay. They work relentlessly to allow children to receive the same meals as their peers, without the stigma or discrimination of having an outstanding lunch tab. All for Lunch is partnering with food pantries and co-ops throughout the community to help stock shelves with nutritious lunch and breakfast items so that children of families living with food insecurity can continue to have access to these essential meals.
Emmaus House works to improve the economic and social well-being of the residents of Peoplestown and surrounding neighborhoods of south Atlanta. Peoplestown is a historic community less than one mile south of downtown and the state Capitol. Emmaus House stands for justice and equity, and is rooted in faith and a deep respect for the dignity of every human being. The non-profit works tirelessly to harness the power of community, education, hope, and love to dismantle poverty, racism, and other barriers to opportunity in the lives and communities they serve.
Nominated in honor of: The parents of former Emmaus House volunteer and nominator Chantal Veira, for modeling the importance of volunteerism, giving, and community engagement.
For 22 years, the East Atlanta Kids Club (EAKC) has been on a mission to building a promising future for the children of southeast Atlanta. EAKC is a nonprofit, out-of-school -time tutoring, mentoring and enrichment program for girls and boys ages 7 to 17. The club was formed in 1998 by local residents hoping to give youth who otherwise have limited after-school and summertime options a safe and stimulating place to play, to learn, and to express themselves under the supervision of caring adults. The program began with a dozen youth and a handful of community volunteers and now offers a rich variety of educational and recreational activities and mentoring opportunities to more than 100 youth each year, free of charge.
Nominated in honor of: Libra Brittian, who has always pledged to serve the community and school system and has selflessly done so for 2+ decades. She’s always the first to reach out and offer help to her students and their families before, during, and after school; with a HUGE smile. — Wendy Frazier (Libra’s sister)
“The Grady Nia Project’s mission is to empower African American women survivors of abuse who are experiencing suicidal thoughts — by providing access to behavioral health services, finding a new sense of purpose, leading more meaningful lives, and affirming their commitment to living a violence-free life. Nia provides a safe, compassionate community that supports women in healing and becoming active in society. The program offers free individual and family therapy, weekly groups, and a 24-hour crisis system. It assists women in accessing community resources and educational/vocational training.”
Nominated in honor of: “Every woman who is no longer with us, because her life was lost at the hands of an abuser.” — Pauline Mansfield
For nearly 100 years, the American Heart Association has been fighting heart disease and stroke, striving to save and improve lives. Building healthier lives, free of cardiovascular diseases and stroke. When you donate to the American Heart Association, you’re joining the fight against our nation’s No. 1 and No. 5 killers — heart disease and stroke. Your donation helps fund lifesaving research, advocate for better health, improve patient care and reach at-risk populations.
Nominated in honor of: Someone who has inspired Yamini to do the work she loves, her PhD advisor and mentor, Professor Claudio Grosman.
American Heart Association
“In a world where crises abound and heartache is in every community, people who want to help often don’t know where to turn. Together Rising has become a place where they turn. For hundreds of thousands of people across America, Together Rising has been the Next Right Thing. Together Rising connects people of conscience with the means to effectively address the urgent needs they see in their own communities and around the world.”
Nominated in honor of: Alyssa’s mom, Renee, because she’s always the first to reach out and offer to help her friends and family.
The Central Texas Food Bank is the largest hunger-relief charity in Central Texas. The organization works with food donors across the country, financial supporters, and volunteers to fill unmet needs in Central Texas—which has allowed them to bring 54 million meals to their community last year and into the hands of families and local nonprofits that turn to them for help.
Nominated in honor of: All the volunteers who help feed the people of Central Texas. Through their work in the Food Bank Garden, Warehouse, Kitchen, and Mobile Food Pantries, volunteers are essential to all the good work done by the Central Texas Food Bank. (Nominated by Chantal.)
Born out of the belief that even one person trapped in slavery is too many, the END IT Movement is a coalition of the leading organizations in the world in the fight for freedom. Each amazing coalition partner is on the ground every day, working toward awareness, prevention, rescue, and restoration. Joined by students, senators, nonprofits, and Fortune 500 companies, END IT represents each of us standing up for what’s right until the number of men, women, and children suffering in silence moves from 40 million around the world to zero.
Nominated in honor of: Ed’s former nanny and close friend Rebecca Nealy. Over the past few years, she has shown his family love and caring, as well as being a positive example to live by. She is a beacon of faith and is generous with her time, energy, and resources.
The American Diabetes Association’s mission is to prevent and cure diabetes and to improve the lives of everyone affected by this disease.
Nominated in honor of: Kathleen’s brother, who has been living with type 1 diabetes since 1960. He has shown that with proper care, education, love and support, and the will to thrive in spite of a chronic disease, it is possible to lead a productive, healthy, and fulfilling life. He has experienced firsthand the advances in treatment over the years, from the initial use of glass syringes and the lack of sugar-free food options to today’s extensive food choices and the use of an insulin pump. He is a trailblazer and an inspiration to everyone who faces a health challenge.
Evolve provides support to individuals with disabilities and their communities through education, employment, and the arts. The organization also offers highly specialized coaching services to more than 200 people each year in the Pittsburgh area, helping these individuals become integrated and productive members of the local community.
Nominated in honor of: All neurodiverse women and girls who can’t get the resources they need because they don’t fit the mold of male-centered diagnostics. (Nominated by Kristin)
SisTers PGH is a Black- and trans-led nonprofit organization that serves QTBIPOC (Queer Trans Black Indigenous People of Color), trans, and nonbinary people within southwestern Pennsylvania.
Nominated in honor of: All trans people, especially Black trans women, who continually endure stigma and violence just for being who they are. (Nominated by Kristin)
1Hood Media Is a collective of socially conscious artists and activists who use art to raise awareness.The Mission Of 1Hood Media is to build liberated communities through art, education, and social justice.
Nominated in honor of: All Black people and people of color who have put up with white fragility and violence for far too long.(Nominated by Kristin)
The Alzheimer’s Association leads the way toward ending Alzheimer’s and all other dementia—by accelerating global research, driving risk reduction and early detection, and maximizing quality care and support.
Nominated in honor of: Frances’s grandmother Izetta H Lynch and her great-aunt Collesta H Richardson. Both these women were fierce! Her grandma taught her how to quilt and to be strong. She had a beautiful heart, and she lived her faith. She was a living Bible—truly angelic. Her great-aunt was also a strong woman with a great heart, but the opposite of her grandmother—a little devilish. Frances says, “She was straightforward, you knew exactly what was on her mind, and she kept us laughing. She’s one of the many people who inspired my joyous spirit and my crazy sense of humor.” Alzheimer’s took both of them, and Frances works to make sure others won’t lose those they love so much.
Society for Science & the Public is a champion for science, dedicated to expanding scientific literacy, effective STEM education and scientific research. They are focused on promoting the understanding and appreciation of science and the vital role it plays in human advancement: to inform, educate, and inspire.
Nominated in honor of: Young Researchers — Yamini
The United MSD Foundation advocates for, supports, and funds biomedical research to cure Multiple Sulfatase Deficiency (MSD) and avails its research to cure other lysosomal storage diseases.
Nominated in honor of: Willow Cannan (7), daughter of Tom Cannan and Amber Olsen and MSD Warrior. In 2016, 2-year-old Willow Cannan was diagnosed with an ultra-rare, fatal, genetic condition called Multiple Sulfatase Deficiency (MSD). At the time of diagnosis Willow’s parents, Tom and Amber, were told that no treatment or cure existed to help their daughter and that typically MSD patients do not live past their 10th birthday. Unwilling to accept the devastating reality that their daughter would not survive, Amber Olsen began a quest for answers — meeting with researchers and doctors in the US and abroad, and founded the United MSD Foundation. Through relentless research efforts and the support of generous donors, the United MSD Foundation has made great strides in the effort to cure this disease — through various drug trials and a path to the first ever clinical trial. Your donation helps to fund critical research to help all children with MSD live a healthy life without limitations. Willow continues to fight to live, and the United MSD Foundation supporters work to finish the fight to cure MSD.
The IMF‘s mission is to improve the quality of life of myeloma patients while working towards prevention and a cure. Founded in 1990, the International Myeloma Foundation (IMF) is the first and largest myeloma-specific charity in the world. With more than 525,000 members in 140 countries, the IMF serves myeloma patients, family members, and the medical community. The IMF provides a wide range of programs in the areas of Research, Education, Support, and Advocacy.
Nominated in honor of: President, Susie Novis Durie, who was a caregiver, and our Chairman of the Board, Dr. Brian Durie. In their leadership of the foundation, each has made enormous differences in myeloma, and in 2019, each was awarded an honorary doctorate from Vrije Universiteit Brussels for scientific excellence. — Diane Moran
Meals on Wheels San Antonio provides services through two programs focused on nourishing lives, enabling independence, and caring for the oldest residents in the community: Meals on Wheels and Grace Place Alzheimer’s Activity Centers. Hundreds of dedicated volunteers travel across the city to deliver not only the hot meal but to also provide daily safety checks and opportunities for socialization. Grace Place Alzheimer’s Activity Centers provide services to seniors with Alzheimer’s and other dementia-related diseases. Respite, on-going education, and support are provided to caregivers.
Nominated in honor of: Jessica’s parents, Vicki and Jesse Ball, who have pledged to serving the community and selflessly deliver meals at least three days a week to make sure that seniors are fed and feel loved — all with a smile and a wave!
The Leukemia & Lymphoma Society’s mission is to cure leukemia, lymphoma, Hodgkin’s disease and myeloma, and improve the quality of life of patients and their families. Compared to other blood cancer nonprofits, LLS is the largest funder of cutting-edge research to advance cures. As the leading source of free blood cancer information, education and support for patients, survivors, families and healthcare professionals, LLS helps patients navigate their cancer treatment and ensures they have access to quality, affordable and coordinated care.
Nominated in honor of: Katie’s Dad, who is a lymphoma survivor. He was diagnosed with diffuse large B-cell lymphoma 7 years ago, and we are happy to say he has been in remission for the past 6 years! Donations to organizations like the Leukemia & Lymphoma Society mean more research, which hopefully means that more people can experience remission.
Khan Academy’s mission is to provide a free, world-class education for anyone, anywhere. Khan Academy offers practice exercises, instructional videos, and a personalized learning dashboard that empower learners to study at their own pace in and outside of the classroom. Khan Academy offers classes in math, science, computer programming, history, art history, economics, and more. Millions of students from all over the world, each with their own unique story, learn at their own pace on Khan Academy every single day.
Nominated in honor of: I would like to honor my parents, who are also my first “teachers”. My parents’ way of life introduced me to compassion, generosity, faith, and optimism as essential building blocks of resilience and success. —Yamini
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